With the famous “Ice Bucket Challenge”, he helped raise more than $ 100 million for the fight against Charcot's Disease (Amyotrophic Lateral Sclerosis). A former college baseball player at Boston College, Pete Frates suffered from this disease, which attacks nerve cells before leading to paralysis and death.
He did not start the Ice Bucket Challenge, a challenge where participants poured themselves a bucket of ice water over their heads and made a donation for the fight against Charcot's disease. But it's his version of the challenge, in 2014, that made him viral. It was filmed with the song “Ice, Ice, Baby” in the background because it could not make the movement to pour a bucket of water on his head.
Thanks to the challenge, the American association ALS Association has received more than 115 million dollars. Pete had then redid the challenge with the Red Sox baseball team. With his wife Julie, whom he had married more than a year after his diagnosis, he had never stopped giving visibility to this little-known disease. In 2016, he received the “Inspiration of the Year” award from the Association of University Athletes in the United States. The following year, he revealed that he was paying more than 60,000 euros a month in hospital costs, to denounce the financial burden of his illness for families.
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